Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
Hawaii Five-0 Actor Dead at 56: One of the ‘Gentlest Souls’
Born in Honolulu, Hawaii, Wily began his professional career as an MMA fighter and sumo wrestler before deciding to pursue acting.
At the age of 56, Taylor Wily, best known for his parts in Magnum P.I. and Hawaii Five-0, passed away.
On Thursday, June 20, Hawaiian artist and celebrity Lina Girl Langi, who had been close friends with Wily and his family, revealed the news of his passing on her lifestyle program Island Life Live.
Langi said on the show, “It is with a heavy heart that I share the news of the passing of a Hawaii celebrity who was also a family friend.” “Taylor Wily, actor, MMA fighter, and former wrestler, passed away in Hurricane, Utah, today.”
Davey D, her co-host, called Wily one of the “kindest” and “gentlest souls.”
Langi did not reveal Willy’s cause of death. She did point out that despite having an intimidating build, the actor was not scary in real life.
She said, “He would appear physically menacing until you simply folded into an embrace, and that was that.” “My heart is shattered.”
According to his IMDb page, Wily began his career as a sumo wrestler under the name “Takamishu” after being born in Honolulu, Hawaii in 1968. He won his first fourteen matches, according to TV Insider, and went on to become the first wrestler not born in the United States to win the title in the third-tier Makushita division.
He then participated in the inaugural Ultimate Fighting Championship event in 2000, losing to fellow fighter Gerard Gordeau and making history as the first competitor to lose in a UFC brawl.
Wily eventually made the transition to acting, starting out in the 1980s and early 2000s with background parts in television series like North Shore, One West, and the original Magnum P.I.
After that, he starred in the movies Radical and Forgetting Sarah Marshall, and on Hawaii Five-0, he was cast as Kamekona, a series regular. In total, 171 episodes of the 2010–2020 season of the show included him. In the Magnum P.I. reboot, he also played the same character again.
On social media, a number of Wily’s acquaintances and admirers offered their condolences to his wife Halona Wily and the rest of his family. Executive producer Peter Lenkov of Magnum P.I. and Hawaii Five-0 also honored the star on Instagram by posting a picture of the two of them together on set.
“I’m inconsolable. Brokenhearted. In a few days, I’ll share some in-depth feelings. Just too difficult at this time,” he wrote.
On Facebook, former Hawaii news reporter Angela Keen wrote that Wily was always “accessible and personable” and had frequently visited kids at Shriners Children’s Hawaii Hospital.
She remarked, “You were the very definition of a gentle giant.” “Taylor Wily, I can’t believe you’re gone.”
After posting a picture of the two, Dennis Chun, who portrayed Sgt. Duke Lukela in the Hawaii Five-0 revival, added, “Laura and I are heart broken to learn of Taylor Wily’s passing.” He was a giant of a man in addition to being a gifted artist.
“Being in a scene with him was always such a joy because of his aloha and heart,” he continued. It was a privilege to work with him and have him as a friend. Taylor, get some rest. Hawaii and I cry this evening. Taylor, till we cross paths again, aloha.
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