Artistes The actor Richard “Kinky” Friedman has d ied. He was 79 years old.
The news came through X on Thursday. “Kinky Friedman stepped on a rainbow at his beloved Echo Hill surrounded by family & friends,” said it. “Kinkster endured tremendous pain & unthinkable loss in recent years but he never lost his fighting spirit and quick wit.”
“Kinky will live on as his books are read and his songs are sung,” said the post. His name was John and he went to the University of Texas at Austin. The exact day he d ied was not given.However, Kinky also ran for governor of Texas as an independent candidate in 2006. With 12% of the vote, he came in fourth place out of six candidates. PROFILE IN MUSIC King Arthur & the Carrots was Kinky’s first band, which he started at UT. They only made one record in 1966, which was Schwinn 24/Beach Party Boo Boo. Surf music was made fun of by King Arthur & The Carrots. Ginky Friedman and the Texas Jewboys was Richard’s second band. They were formed in 1973. They didn’t stay together for long, and Kinky’s self-titled album came out in 1974.
Following two years, Kinky went on tour with Bob Dylan. He was a musical guest on Season 2 of Saturday Night Live after the tour. In 2011, the artist went on a world tour as the main act. KiNKY has put out 18 albums so far. His most recent one, Circus of Life, came out in 2018. NOTHING ELSE Later, when Richard’s music career stopped going forward in the 1980s, he started writing.
He mostly wrote detective books, which have made-up versions of himself and lyrics from his songs. In New York City, the character fights crime while telling jokes, giving advice, recipes, and charm. In his mind, he is like Sherlock Holmes from a different time. Kinky Friedman did not appear in Kill Two Birds and Get Stoned or The Christmas Pig, two books that Kinky wrote. Additionally, he had a regular column for Texas Monthly from 2001 to 2005.
He stopped writing the column when he ran for governor in 2006. But two years later, the newspaper brought back his column every two months. In 1986, Richard ran as a Republican for Justice of the Peace in Kerrville, Texas, but lost. This was before he ran for Governor.
Mom of Boy with Rare Condition Shares Their Life, People React Differently
Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
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