Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
\
Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Woman buys abandoned lighthouse and turns it into cozy “nautical” home
Picture owning your very own lighthouse, a majestic beacon overlooking a vast bay, embodying both hope and history.
Sheila Consaul, a 65-year-old aficionado of historic preservation, turned this dream into reality.
For a sum of $71,000, Sheila purchased a derelict lighthouse in Fairport Harbor, Ohio, and embarked on a journey that would see her invest over $300,000 in transforming it into her dream vacation home.
Living in a lighthouse is far from ordinary; solitude greets you at every turn.
Forget about a driveway leading to the front door; instead, you park half a mile away and transport everything you need by hand, from groceries to generator fuel. Yet, the experience, once embraced, is unparalleled.
Sheila’s journey began from her passion for historic preservation and a desire for a unique summer retreat.
Upon discovering that the government was auctioning off lighthouses, she saw an opportunity to merge her interests.
Though the lighthouse she acquired was in a sorry state, with cracked windows and peeling plaster, Sheila remained undeterred.
With the aid of a home equity loan, she embarked on a challenging yet fulfilling renovation project.
Renovating the lighthouse presented numerous challenges; every construction material had to be hoisted by crane and transported by boat due to its remote location.
Furthermore, being entirely off the grid posed additional hurdles; rebuilding the electrical system and relying on a gasoline-powered generator were just a few of Sheila’s tasks.
Despite these obstacles, the transformation is remarkable.
Today, the lighthouse boasts a fully equipped kitchen with granite countertops and modern appliances.
The plumbing and electrical systems have been overhauled, while the once-broken windows now showcase stunning stained glass.
However, preserving its historical essence was equally paramount.
Original features like dark brown floorboards and cast-iron stairs remain intact, alongside innovations such as a rainwater collection system.
Since 2012, Sheila has welcomed guests to the lighthouse, hosting annual open houses and sharing this community treasure with others.
Maintained by the Coast Guard and still serving as a navigational aid, the lighthouse stands as a testament to community and heritage.
Would Sheila embark on this journey again? Perhaps not, but the rewards have been immeasurable.
While she currently has no plans to rent out her unique summer home, she remains open to the possibility.
For now, she revels in the fruits of her labor and the extraordinary experience of lighthouse living.
Sheila Consaul’s story exemplifies what happens when perseverance and passion converge.
She didn’t just acquire a property; she rescued a historical gem, ensuring it endures for generations to come.
Take a virtual tour of the lighthouse in the accompanying video below!
Feel free to share this remarkable tale with your loved ones.
Leave a Reply