In a small Brazilian town, there resides an extraordinary duo of identical twins named Elis and Eloá. Their story serves as a beacon of resilience and the remarkable power of the human spirit. Afflicted with Hutchinson-Gilford Progeria Syndrome, a rare and fatal genetic disorder causing accelerated aging, these twins confront their adversities with remarkable grace and strength, earning admiration from people worldwide.
Understanding Hutchinson-Gilford Progeria syndrome
HGPS stands as an exceptionally rare disorder, impacting roughly 1 in 20 million newborns globally. Marked by rapid aging from early childhood, individuals with progeria often display growth delays, diminished body fat and hair, prematurely aged skin, joint stiffness, and severe cardiovascular issues. Typically, those with HGPS have an average life expectancy of about 14.5 years, though some may extend into their late teens or early twenties. This syndrome gained public attention through the film The Curious Case of Benjamin Button.
The condition is caused by a mutation in the LMNA gene, which produces the lamin A protein responsible for maintaining the structural integrity of the cell nucleus. The mutation results in the production of an abnormal version of the protein, called progerin, which causes cells to become unstable and die prematurely.
Elis and Eloá’s journey
Elis and Eloá swiftly captured attention because of their distinctive medical condition. Despite the physical hurdles imposed by progeria, their contagious smiles and steadfast optimism have emerged as beacons of hope and inspiration. Guilherme and Elismar, the twins’ parents, have dedicated their lives to offering the utmost care for their daughters, striving to ensure they experience as normal a life as feasible within the confines of their condition.
The family’s path has been far from easy. Their daily life is filled with demanding medical routines, including physiotherapy, aimed at addressing joint stiffness and preserving mobility. Despite these challenges, Elis and Eloá approach each day with remarkable bravery and an unparalleled enthusiasm for life, which is truly remarkable.
A global community of support
Elis and Eloá’s narrative has touched hearts worldwide, sparking a surge of solidarity from individuals and groups committed to promoting awareness about progeria and backing research endeavors. The Progeria Research Foundation, a pivotal entity in this realm, has played a vital role in propelling research forward and furnishing assistance to families grappling with the condition.
Through social media platforms, the twins’ journey is shared with a broad audience, fostering a sense of community and solidarity. Their family’s updates, documenting both the highs and lows of their daily lives, provide invaluable insights into the realities of living with progeria, while also spreading a message of hope and perseverance.
Advances in research and hope for the future
In recent years, there have been remarkable advancements in comprehending and addressing progeria. A notable milestone occurred in 2020 when the U.S. Food and Drug Administration (FDA) granted approval for the first progeria treatment: lonafarnib. This medication has demonstrated efficacy in prolonging the lives of children with progeria by mitigating the accumulation of progerin in cells, thereby decelerating the disease’s advancement.
Though a cure remains elusive, ongoing research presents promising prospects. Scientists are delving into gene-editing methodologies, like CRISPR, as potential means to rectify the genetic mutation at its root. For families such as Elis and Eloá’s, these breakthroughs offer a ray of hope for the future.
And in our other article, we recounted the remarkable story of a girl born without a nose, affectionately dubbed “Voldemort,” who refuses to let her differences define her.
Elon Musk Takes Aim At Woke Colleges, Accuses Them Of Promoting “Full-On Communism”
Famous businessman Elon Musk is in the news once more, this time for his vocal criticism of American colleges for allegedly pushing socialist doctrines. Musk has voiced his worries about the direction American higher education is going in an interview.
Musk, who is well-known in the IT sector for his inventiveness and leadership, did not hold back when expressing his concerns about what he sees as a concerning trend in academics. According to Musk, “it’s full-on communism and a general sentiment that if you’re rich, you’re evil.” He continued by expressing his displeasure with “neo-Marxist” influences in schooling.
One of Musk’s children has grown away from their wealthy father, which has caused tension in their relationship. This is a direct result of Musk’s candid opinions on capitalism and riches. Vivian Jenna Wilson, Musk’s transsexual daughter, 18, decided to alter her name in order to distance herself from the Musk family’s history. Citing differences in their values, she stated that she want to stay away from her biological father.
“It may change, but I have very good relationships with all the others [children],” Musk said, despite acknowledging the difficulties in his relationship with Vivian. Despite the difficulties in his personal life, Musk has managed to retain good relationships with the majority of his nearly ten children from different relationships.
This incident brings to light a larger worry held by many Americans who respect their personal liberties and minimal government involvement. Recent surveys show that more people, especially younger ones, are beginning to embrace socialist and communist ideas. While 41% of all adults currently have a good opinion of socialism, less than half of 18 to 34-year-olds have a positive view of “capitalism.”
The growing popularity of politicians who support socialist measures, such as Alexandria Ocasio-Cortez and Bernie Sanders, is indicative of this ideological shift. These extreme ideas have found a home on college campuses, which were once hubs for free speech and a diversity of viewpoints.
Studies have shown that a large number of teachers have left-leaning political views, which may have an impact on the subjects and tenor of their classes. Conservative students frequently express a sense of being sidelined and suppressed during class discussions, which is concerning since it suggests that the educational system is politically indoctrinating pupils.
Given this context, it is not shocking that 36% of college students today say they would rather be a communist; they reject the term “democratic socialism” in favor of a more radical philosophy more akin to communism in the Soviet Union.
Marxist ideas’ effect on the family is another issue that Musk’s tense relationship with his daughter brings up. Marxism aims to dismantle the conventional family unit and replace it with centralized government authority. Future generations’ values and views are shaped by their families, which are the cornerstone of society. Breaking these ties can have long-term effects.
Elon Musk’s critique of American institutions, in conclusion, highlights the spread of leftist ideas in higher education. Along with the apparent bias in academics, the emergence of socialism and communism among young Americans raises significant concerns about the future of our civilization. It is crucial to have frank and open conversations regarding the role of the government and individual liberties in order to make sure that our educational system fosters critical thinking and diversity of opinion rather than ideological conformity.
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