Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
Roller Skating and Skate Keys: A Nostalgic Blast from the Past
Roller skating has been a beloved pastime enjoyed by generations of kids and adults alike. It’s hard to believe that the first use of roller skates was in a London stage performance way back in 1743!
John Joseph Merlin, a London resident in 1760, deserves the credit for inventing the first skates. Roller skates have certainly come a long way since then!
In the United States, roller skating gained popularity as a pastime in 1935. But it wasn’t until the introduction of skating rinks playing disco music in the 1970s that roller skating became a huge trend. It seemed like everyone wanted to hit the rinks and groove to the music!
Speaking of roller skating, let’s take a trip down memory lane. Do you remember those heavy metal skates that you could attach to your shoes? They were quite the fashion statement back in the day. But there’s something else that you might remember if you were a skater before the 1970s – the iconic skate key.
This copper-colored object was an essential accessory for anyone with roller skates. At first glance, it may look like a bottle opener or some kind of tool, but it is actually a skate key. With the skate key, you could adjust the size of your skates by fitting it into the back of the pair. And to make sure they didn’t get lost while skating, most people wore the key around their necks. It was a small but significant part of the roller skating experience.
Skate keys were such an integral part of roller skating that there have even been songs written about them! They symbolize a time when roller skating was a cherished activity, filled with fun and memories.
So, do you remember skate keys? We’d love to hear your skating stories on our Facebook page. Let’s share this delightful blast from the past with others who may have fond memories of roller skating and skate keys too!
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