Céline Dion Shares Raw Video of Stiff-Person Syndrome Crisis in Never-Seen Footage from New Documentary

In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.

Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.

After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).

Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.

Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”

In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?

The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.

“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”

Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.

Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”

Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”

Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.

Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.

Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”

Michael Jackson’s Son “Blanket” Debuts New Nickname in Search of New Identity

Michael Jackson’s youngest child, Prince Michael Jackson II, known widely as “Blanket” for many years, made a significant personal decision to change his nickname after more than a decade. Born in 2002 via surrogate, Prince Michael Jackson II earned the nickname “Blanket” due to his father’s habit of covering him with a blanket to shield his identity and maintain privacy.


This nickname followed him throughout his early life, but by 2015, he chose to rebrand himself as “Bigi” Jackson. The decision marked a new chapter in his life, reflecting his desire to move away from the legacy of his childhood nickname.

Although Bigi is the son of one of the most iconic figures in music history, he has shown little interest in following in his father’s musical footsteps. Instead, he has emerged as an advocate for environmental causes, particularly focusing on the pressing issue of climate change. In a 2021 interview, Bigi spoke about his commitment to addressing climate change and the importance of raising awareness about this global challenge.

During the interview, Bigi expressed his admiration for the history and creativity that surrounded his father’s work, while also emphasizing the need to contribute positively to the world. He stated, “That’s what each of us want to do, make some things that people hopefully enjoy but also that benefit their lives.” His passion for climate activism reflects a deep concern for the environment and a sense of responsibility toward future generations.

After the death of Michael Jackson in 2009, Bigi, along with his siblings Prince Michael Jackson I and Paris Jackson, was raised by their grandmother, Katherine Jackson. Today, Bigi lives independently in a mansion in California.

Public reaction to Bigi’s name change and his dedication to climate activism has been overwhelmingly supportive. Many have praised him for his resilience in coping with the loss of his father and for his commitment to making a difference in the world. Supporters have expressed their admiration for his choice to focus on climate change and have wished him well in his endeavors.

Despite his famous lineage, Bigi has openly admitted that he does not possess his father’s talent for singing or dancing. Instead, he is channeling his energy into raising awareness about environmental issues, and encouraging others to take action to combat climate change.

As Bigi Jackson continues to carve out his own path, he remains dedicated to making a meaningful impact on the world, all while stepping out from the shadow of his father’s legacy.

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